NGO Fund (2009 Call)
Title: Thalassaemia Specific Electronic Communications
Acronym: TSEC
Total Requested funding: 52,885
Coordinator: Thalassaemia International Federation
Partners:
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Northern Cyprus Thalassaemia Association,
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Interfusion Services Ltd (subcontractor)
The promise that Electronic Health Records (EHRs) will enable the transformation of the medical practice in terms of saving patient lives, saving money and time, has been around for a long time, but the fulfilment of such a promise in real-world application has remained elusive due to many factors. The most frequently cited factors are privacy, security and cost of implementation of such systems. Even though some other factors not frequently being cited include lack of support from practise physicians and lack of time to input historic patient medical record data into EHR.
The most important aspect when maintaining an electronic health record is privacy. Within TSEC two modules will be developed (Module1 - serious infections register and Module 2 - adverse drug reaction record) in an effort to enhance clinical support and to improve patient care. These two modules do not exist in available disease specific electronic patient records.
Additional benefits include the creation of a national patient register but also the possibility of enhanced networking between countries to exchange expertise and experiences.
For more information you can refer to the Project's website: http://www.tsec-project.com/.
